Appendix - Poor Information Websites

We have investigated the following websites but we felt that the provided information was not satisfactory for someone looking for information.

Acute Lymphocytic Leukaemia (ALL), Acute Myeloid Leukemia (AML)

Children’s Cancer and Leukaemia Group

Leukaemia & Lymphoma Society
Teenage Cancer Trust

Hodgkin's Lymphoma, Non-Hodgkin Lymphoma

St. Jude Children's Research Hospital

Children’s Cancer and Leukaemia Group
Teenage Cancer Trust

Wilms Tumour

St. Jude Children's Research Hospital

Children’s Cancer and Leukaemia Group

Osteosarcoma, Ewing's Sarcoma

Children’s Cancer and Leukaemia Group
Teenage Cancer Trust

Gliomas, Neuroblastoma

Children’s Cancer and Leukaemia Group

St. Jude Children's Research Hospital

Brain & Spine Foundation

The Neuroblastoma Society

The Childhood Brain Tumour Foundatio

Retinoblastoma

National Cancer Institute

Children’s Cancer and Leukaemia Group

St. Jude Children's Research Hospital

 

 

Contact us if you think the rating of those websites under the specified categories should be changed.

 

 

 

WHY?

Why in my brain?
It caused me so much pain.
Why in my head?
Perhaps somewhere else instead.
Why in my brain?
We tried a fluid drain.

I just want to walk like you.
I’ve had enough now, haven’t you too?

Poem from Sophie Pollock who lost her battle with cancer in 2007.

Things you can do on Difficult Days

Talk about the child who has died.
Write a letter to him/her.
Eat his/her favourite food.
Watch a video of him/her.
Wear one of his/her clothes like a scarf.
Light a candle.
Look at photos.
Listen to his/her favourite music.
Visit the grave.
Cry, laugh, scream.
Release a balloon with a message.

Some tips for parents and siblings.

What’s the Point?

What’s the point of eyes,
If you’re not here to see?
What’s the point of ears,
If you cannot hear me?
Every sense on my body,
Useless as a broken toy,
What’s the point of beauty,
If you cannot enjoy?

Cry of a parent - by JK.