Inspirations

Join the “More Research” advocacy by giving updates of child’s treatment journey

Your child is going through treatments. Every day is different. There are good days and bad days. You are talking to different people whether they are family, relatives, or friends and neighbours, explaining how everything is going. You are tired most of the time… Here you can keep everybody notified and connected… Stay on Monty's Corner if you prefer a simple journal keeping...

If you prefer a personalised website where you can also upload photos and change the colours of the website then we would recommend the Caring Bridge websites. If you choose to create a website on Caring Bridge, please let us know link to your journal history page .

That way, not only your close family and friends know what is happening but also other people around the world will know what is happening with your child, which we think is a great community support and great advocacy for investing into research on childhood cancers more.

Because childhood cancers are rare it does not mean that less money should be invested.

This is why we want to collect all the journals here, either directly or via links.

 

Tiffany's Journey

Submitted by playsuper on Thu, 05/13/2010 - 17:09

In March of 2002 Tiffany broke out in a rash while ill with a virus. The doctor was not able at the time to tell us what Tiffany had but knew what she didn't have. Finally in August after numerous bone marrow aspirates and blood tests she was diagnosed with CMML are form of leukemia that usually strikes senior citizen men and has been diagnosed in just a couple hundred teen and preteen girls. When it is so rare no one can really provide any information.Read more

Syndicate content

WHY?

Why in my brain?
It caused me so much pain.
Why in my head?
Perhaps somewhere else instead.
Why in my brain?
We tried a fluid drain.

I just want to walk like you.
I’ve had enough now, haven’t you too?

Poem from Sophie Pollock who lost her battle with cancer in 2007.

Things you can do on Difficult Days

Talk about the child who has died.
Write a letter to him/her.
Eat his/her favourite food.
Watch a video of him/her.
Wear one of his/her clothes like a scarf.
Light a candle.
Look at photos.
Listen to his/her favourite music.
Visit the grave.
Cry, laugh, scream.
Release a balloon with a message.

Some tips for parents and siblings.

What’s the Point?

What’s the point of eyes,
If you’re not here to see?
What’s the point of ears,
If you cannot hear me?
Every sense on my body,
Useless as a broken toy,
What’s the point of beauty,
If you cannot enjoy?

Cry of a parent - by JK.