Cancer Resources

Introduction

Monty’s Corner aims to provide you with access to the best information sources on childhood cancers from around the world covering diagnosis, treatment, prognosis, clinical trials and more…

In order to bring you this information, we reviewed a broad number of sites from different countries. The material offered by these sites was then assessed from the perspective of someone seeking a key set of information and then each site was ranked based on the quality of the information.

What do we mean by "Quality Information?

When an information seeker reads a piece of text:

  • does s/he understands the information easily?
  • is s/he satisfied with the information?
  • does s/he feel the need to go elsewhere to get more information on that particular topic?

Please note that we did not include the following as part our scoring criteria:

  • Correctness of information on a particular topic
  • Comprehensiveness of the topics such as diagnosis and treatments.

We have reviewed websites providing cancer information originated from the UK, USA and Australia and gave a scoring of GOOD, MEDIUM or POOR.

Montycon smiling - GOOD
Montycon neutral - MEDIUM
Montycon sad - POOR

 

At the end of this section, you will also find the sites which scored "poor".

We will appreciate if you give us feedback, make suggestions or tell us what other information you are seeking and cannot find.

We want to make sure that you know where to get the best quality information on childhood cancers.

Leukaemias AML ALL CML

Acute Lymphocytic Leukaemia (ALL)

Society Name: National Cancer Institute Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 • Blood and bone marrow tests

 • Possibly spinal tap

Treatment Overview:

 • Chemo

Clinical Trial? Search for Clinical Trial details here. Active trials in the US and UK are covered. Prognosis:

Acute Myeloid Leukaemia (AML)

Society Name: St. Jude Children's Research Hospital Overall Score:
Coverage: Children Origin: United States
Disease: Symptoms:
Diagnosis Overview: Not available
Treatment Overview:

 • Chemo

 • Allogeneic stem cell transplantation

Clinical Trial? View Clinical Trial details here Prognosis:

 

Society Name: Children’s Cancer and Leukaemia Group (PDF) Overall Score:
Coverage: Children Origin: United Kingdom
Disease: Symptoms:
Diagnosis Overview:

 • Blood and bone marrow tests

 • Lumbar puncture

 • X-ray

Treatment Overview:

 • Chemo

Clinical Trial? Not available Prognosis:

Chronic Myelogenous Leukemia (CML)

Society Name: Leukaemia & Lymphoma Society Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 • Blood and bone marrow and cytogenic tests

Treatment Overview:

 • Oral CML Therapy

 • Stem Cell transplantation

 • Donor lymphocyte infusion

Clinical Trial? Not available Prognosis:

 

 

 

Lymphomas

Hodgkin's Lymphoma

Society Name: Lymphoma Research Foundation Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 • Biopsy

 • Blood test

 • Bone marrow test

 • X-ray, MRI, CT, PET

Treatment Overview:

 • Chemo

 • Radiotherapy

 • Stem cell transplantation

 • Bone marrow transplant

 • Biologic treatment

 • Vaccines and cell therapies

 • Alternative remedies

Clinical Trial? Search for Clinical Trial details on NCI site. Active trials in the US and UK are covered. Prognosis:

Non - Hodgkin Lymphoma

Society Name: Lymphoma Research Foundation Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 • Biopsy

 • Blood test

 • Bone marrow test

 • X-ray, MRI, CT, PET

 • Cerebrospinal fluid examination

 • Molecular diagnostic tests

Treatment Overview:

 • Chemo

 • Radiotherapy

 • Stem cell transplantation

 • Bone marrow transplant

 • Novel Agent

 • Alternative remedies

Clinical Trial? Search for Clinical Trial details on NCI site. Active trials in the US and UK are covered. Prognosis:

 

 

 

Sarcomas

Osteosarcoma

Society Name: St. Jude Children's Research Hospital Overall Score:
Coverage: Children Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 •  Biopsy

 •  Blood tests

 •  Plain x-rays and MRI

 • CT scan of chest and radionuclide bone scan

Treatment Overview:

 • Chemo

 • Surgey

Clinical Trial? Search for Clinical Trial details on NCI site. Active trials in the US and UK are covered. Prognosis:

Ewing's Sarcoma

Society Name: National Cancer Institute Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 •  Physical exam and history

 •  Complete blood count

 •  Blood chemistry studies

 •  Sedimentation rate

 •  X-ray, MR, CT scan (CAT scan)

Treatment Overview:

 •  Combination chemotherapy, Surgery and / or Radiationtherapy

Clinical Trial? Search for Clinical Trial details here. Active trials in the US and UK are covered. Prognosis:

Rhabdomyosarcoma

Society Name: National Cancer Institute Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 •  Physical exam and history

 •  X-ray, CT scan (CAT scan), MRI, Ultrasound exam

 •  Bone scan

 •  Lumbar puncture

 •  Biopsy

 •  Bone marrow aspiration and biopsy

 •  Light and electron microscopy

 •  Immunohistochemistry study

Treatment Overview:

 • Chemo

 • Surgey

 • Radiation therapy

Clinical Trial? Search for Clinical Trial details here. Active trials in the US and UK are covered. Prognosis:

 

Society Name: Children’s Cancer and Leukaemia Group (PDF) Overall Score:
Coverage: Children Origin: United Kingdom
Disease: Symptoms:
Diagnosis Overview:

 •  Biopsy

 •  X-ray, CT, MRI, Ultrasound exam

 •  Blood and bone marrow tests

Treatment Overview:

 • Chemo

 • Surgey

 • Radiotherapy

Clinical Trial? View Clinical Trial details here Prognosis:

 

 

 

Kidney Cancers

Wilms Tumour

Society Name: National Cancer Institute Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 • Physical exam and history

 • Biopsy

 • Complete blood count (CBC)

 • Serum tumor marker test

 • Blood chemistry studies

 • Liver function tests

 • Renal function test

 • Urinalysis

 • Abdominal X-ray, CT, Ultrasound

Treatment Overview: Depends on Stage, but

 • Nephrectomy with lymph node removal followed by combination chemotherapy

 • Also radiationtherapy and Watchful Waiting

Clinical Trial? Search for Clinical Trial details here. Active trials in the US and UK are covered. Prognosis:

Clear Cell Sarcoma

Society Name: Cure Search for Children's Cancer Overall Score:
Coverage: Children Origin: United States
Disease: Symptoms: Not available
Diagnosis Overview: Not available
Treatment Overview:

 • Possible radiation treatment

Clinical Trial? Not available Prognosis:

 

 

 

Liver Cancers

Hepatoblastoma

Society Name: St. Jude Children's Research Hospital Overall Score:
Coverage: Children Origin: United States
Disease: Symptoms:
Diagnosis Overview: Not available
Treatment Overview:

 • Chemo followed by total resection. Possibility of liver transplantation if whole liver affected.

Clinical Trial? Not available Prognosis:

 

Society Name: National Cancer Institute Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 • Physical exam and history

 • Biopsy

 • Complete blood count (CBC)

 • Serum tumor marker test

 • Liver function tests

 • Abdominal X-ray, CT, MRI, Ultrasound

Treatment Overview:

 • Depends on stage and other factors. Possibly surgery.

Clinical Trial? Search for Clinical Trial details here. Active trials in the US and UK are covered. Prognosis:

Hepatocellular carcinoma

Society Name: National Cancer Institute Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 • Physical exam and history

 • Biopsy

 • Complete blood count (CBC)

 • Serum tumor marker test

 • Liver function tests

 • X-ray, CT, MRI, Ultrasound

Treatment Overview: Depends on Stage, but normally

 • Surgery

 • Combination Chemo

 • Chemoemobilization

Clinical Trial? Search for Clinical Trial details here. Active trials in the US and UK are covered. Prognosis:

 

 

 

Cancers of the Central Nervous System

Gliomas

Society Name: National Cancer Institute Overall Score:
Coverage: Children Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 •  Immunohistochemistry study

 •  Light and electron microscopy

 •  Cytogenetic analysis

Treatment Overview: Depends on type, but

 • Chemo

 • Surgey

 • Radiationtherapy

Clinical Trial? Search for Clinical Trial details on Clinical Trial.gov site Prognosis:

Neuroblastoma

Society Name: National Cancer Institute Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 •  Physical exam and history

 •  Biopsy

 •  Twenty-four-hour urine test

 •  Blood chemistry studies

 •  Cytogenetic analysis

 •  X-ray, CT scan (CAT scan), Ultrasound exam

 •  Bone marrow aspiration and biopsy

 •  Neurological exam

 •  Immunohistochemistry study

 •  MIBG (metaiodobenzylguanidine) scan

Treatment Overview: Depends on Stage

 •  Chemotherapy, Surgery, Radiotherapy and clinical trials

Clinical Trial? Search for Clinical Trial details on NCI site. Active trials in the US and UK are covered." target="_blank" rel="nofollow">View Clinical Trial details here Prognosis:

 

Society Name: The Children's Neuroblastoma Cancer Foundation Overall Score:
Coverage: Child/Adult Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 •  Biopsy

 •  Urine test

 •  Blood tests

 •  X-ray, CT scan, Ultrasound, PET scan, MRI

 •  Bone marrow aspiration and biopsy

 •  Bone scan

 •  MIBG scan

Treatment Overview:

 • Surgery

 • Chemotherapy

 • Retinoid therapy

 • Radiation therapy

 • High-dose chemotherapy/radiation therapy and stem cell transplant

 • Immunotherapy

Clinical Trial? Not available Prognosis:

 

 

 

Other Types

Retinoblastoma

Society Name: The Childhood Eye Cancer Trust Overall Score:
Coverage: Children Origin: United Kingdom
Disease: Symptoms:
Diagnosis Overview:

 •  Eye exam, CT, MRI

Treatment Overview:

 • Chemo

 • Surgey

 • Radiotherapy and enucleation

 • Cryotherapy

 • Radioactive plaque

Clinical Trial? Not available Prognosis:

 

Society Name: Through An Angel's Eyes Overall Score:
Coverage: Children Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 •  Eye exam

 •  CT or MRI

 •  Ultrasound

Treatment Overview: Surgery if small, else radiation and chemotherapy
Clinical Trial? Not available Prognosis:

Germ Cell Tumours (Brain, Solid Tumour)

Society Name: National Cancer Institute Overall Score:
Coverage: Children Origin: United States
Disease: Symptoms:
Diagnosis Overview:

 •  Physical exam and history

 •  Biopsy

 •  Serum tumor marker test

 •  Blood chemistry studies

 •  Cytogenetic analysis

 • Chest X-ray, CT scan, Ultrasound exam

 •  Immunohistochemistry study

Treatment Overview:

 •  Surgery

 •  Watchful Waiting

 •  Chemotherapy

Clinical Trial? Search for Clinical Trial details on NCI site. Active trials in the US and UK are covered. Prognosis:

 

 

 

Appendix - Poor Information Websites

We have investigated the following websites but we felt that the provided information was not satisfactory for someone looking for information.

Acute Lymphocytic Leukaemia (ALL), Acute Myeloid Leukemia (AML)

Children’s Cancer and Leukaemia Group

Leukaemia & Lymphoma Society

Teenage Cancer Trust

Hodgkin's Lymphoma, Non-Hodgkin Lymphoma

St. Jude Children's Research Hospital

Children’s Cancer and Leukaemia Group

Teenage Cancer Trust

Wilms Tumour

St. Jude Children's Research Hospital

Children’s Cancer and Leukaemia Group

Osteosarcoma, Ewing's Sarcoma

Children’s Cancer and Leukaemia Group
Teenage Cancer Trust

Gliomas, Neuroblastoma

Children’s Cancer and Leukaemia Group

St. Jude Children's Research Hospital

Brain & Spine Foundation

The Neuroblastoma Society

The Childhood Brain Tumour Foundatio

Retinoblastoma

National Cancer Institute

Children’s Cancer and Leukaemia Group

St. Jude Children's Research Hospital

 

 

Contact us if you think the rating of those websites under the specified categories should be changed.