Melanie’s brain and eyes

Submitted by meltem on Mon, 10/26/2009 - 18:37

We are waiting for her MRI and CT scans to come in. They were taken a while ago when she had this weird infection around her eyes.

The scans show some abnormality in her brain and the consultants are not entirely sure what that means. Some think that they are sign of leukaemia cells. Not to take any chances, they add additional chemo injections through the spine.

They also suggest radiotherapy on the head after the chemo treatments are over.

In the mean time, Melanie complains about her eyes. We call the eye doctor. After a series of examinations, the eye doctor tells us that her right eye will not see perfectly.

I am overwhelmed with the result but I try to convince myself that it is ok if this is the only negative outcome she are going to have as a result of the treatments.

WHY?

Why in my brain?
It caused me so much pain.
Why in my head?
Perhaps somewhere else instead.
Why in my brain?
We tried a fluid drain.

I just want to walk like you.
I’ve had enough now, haven’t you too?

Poem from Sophie Pollock who lost her battle with cancer in 2007.

Things you can do on Difficult Days

Talk about the child who has died.
Write a letter to him/her.
Eat his/her favourite food.
Watch a video of him/her.
Wear one of his/her clothes like a scarf.
Light a candle.
Look at photos.
Listen to his/her favourite music.
Visit the grave.
Cry, laugh, scream.
Release a balloon with a message.

Some tips for parents and siblings.

What’s the Point?

What’s the point of eyes,
If you’re not here to see?
What’s the point of ears,
If you cannot hear me?
Every sense on my body,
Useless as a broken toy,
What’s the point of beauty,
If you cannot enjoy?

Cry of a parent - by JK.