The boy next room

There is this boy, named Andy. He is 14 yrs old. I find out that he has been in and out of hospital for the last four years. I am terrified. Fours years of treatment… Goodness this sounds awful amount of time. The doctors said Melanie will be given the standard four month-course chemotherapy treatment.

Four months vs four years. I am thinking, shall I be grateful, shall I worry or what? I see Andy’s mother outside the ward, smoking when ever she gets a chance. First we criticise her about smoking then her unfriendliness.

When the time passes and we spend enough time in the hospital we come to realise that everything the parents do is just normal. You can be smoking, you have the right to be unfriendly or do whatever you want. There is just too much to take in, so many things to do and think. I am ashamed that I dared to criticise this poor women. I have been experiencing all this only a few months and she has been there for four years. I now know and understand that every behaviour is normal.

Andy goes around each room and cheers the little ones up. He makes jokes to Melanie about the NG tube. It is amazing to see how these little minds can be so strong.

WHY?

Why in my brain?
It caused me so much pain.
Why in my head?
Perhaps somewhere else instead.
Why in my brain?
We tried a fluid drain.

I just want to walk like you.
I’ve had enough now, haven’t you too?

Poem from Sophie Pollock who lost her battle with cancer in 2007.

Things you can do on Difficult Days

Talk about the child who has died.
Write a letter to him/her.
Eat his/her favourite food.
Watch a video of him/her.
Wear one of his/her clothes like a scarf.
Light a candle.
Look at photos.
Listen to his/her favourite music.
Visit the grave.
Cry, laugh, scream.
Release a balloon with a message.

Some tips for parents and siblings.

What’s the Point?

What’s the point of eyes,
If you’re not here to see?
What’s the point of ears,
If you cannot hear me?
Every sense on my body,
Useless as a broken toy,
What’s the point of beauty,
If you cannot enjoy?

Cry of a parent - by JK.